Patient Care Conference

Marilyn:

On Tuesday we had a patients care conference with Dr. Scott Synder to discuss Jackson's conditions and what to expect. Some of the information was scary. He will have some obstacles to overcome for being born at 25 weeks. With regarding the brain he is not out of the woods yet. In a week Jackson will get another head scan to check for PVL (perventricular leukomalacial ). This is basically where hollow spaces form when brain tissue around the ventricles softens and dies away, forming a cyst on the brain and nonfunctional brain tissue. If this occurs, it will affect his gross motor skills that could lead to cerebral palsy or some limited functions of the arms or legs. There has been no indication of this forming, but the doctor said he's at a higher risk for this because he was born with an infection. I almost wish I didn't know about this until he did have this problem. The doctors want to inform us of all things and they may not even occur, but we need to be aware of what could happen so we can be prepared. I believe everything is in the Lords hands. I hope it is not in His plan for Jackson to have a disability. But I will trust in Him and have faith and I know anything is possible with our Heavenly Fathers help. I believe in miracles and I will continue to pray for more. I know he's a special little spirit with a great purpose in this life.

Other concerns Jackson may have to face is hearing loss. They will check his hearing before he leaves the hospital and at 4 to 6 months. He may be at risk because of being on certain antibiotics.

Jackson is also at risk for Retinopathy of prematurity. This can lead to blindness and other vision problems. Blindness is rare and the ophthalmologist will do eye checks to determine if there are any problems developing. Being on oxygen for so long can lead to eye problems and laser surgery can be done to correct some issues.

His heart is doing well and there should not be any future problems

His lungs need to mature and develop. On Wednesday Jackson was put on a medication to help open the lungs more, to help prevent his oxygen levels from going down.

Overall he is doing well. I love to hold him, he's such a snuggle bug. Thank you again for all your prayers and all the many acts of services. We feel truly blessed as we go down this journey.